Cancer and Blood Disorder Support Services

 

The Dan Brooks Memorial Educational Award for Students With Cancer
Living in Love
The Pediatric Neuro Oncology Team
Play It Forward-ACTS Program (Athletes, Courage, Teamwork and Support)
School Re-Entry and Intervention Program for Children with Cancer and Chronic Blood Disorders
Surviving the Search: College Workshop and Expo

 

Supported by the Sunrise Fund, which was started at Stony Brook to raise awareness of childhood cancer and to fund specific programs, these services help children and families deal with many of issues around cancer and its treatment.

The Dan Brooks Memorial Educational Award for Students With Cancer
Open to all graduates of the Pediatric Oncology Program at Stony Brook Children's, this award helps with higher education costs, such as college or post-high school vocational training. It was established in memory of Dan Brooks, a young man who completed treatment for leukemia at Stony Brook but later died in an automobile accident. Inspired by his experience with childhood cancer, Dan went on to obtain his degree in special education so he could help children facing challenges and this award reflects his dedication to education. Stony Brook has received many accolades for this one-of-a-kind program as it gives EVERY child who graduates from the Stony Brook pediatric cancer program a small monetary award (approximately $500 to $1,000) designated for the child's post-high school education. It is given annually through four years of college and in a typical school year, the department may help support 20 to 25 students.

Contact: Call (631) 444-7521 for more information.

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Living in Love
Through palliative, end-of-life, and bereavement care, this program is designed to minimize the physical, emotional, and psychological pain and suffering of children diagnosed with cancer or blood disorders and their families. The interdisciplinary program promotes quality of life by providing supportive care services to these children and their families. The care is comprehensive, compassionate, and sensitive to cultural and spiritual diversity. Services can include medicine, nursing, child life, chaplaincy, psychology, social work, language interpretation, nutrition, and pain management. Bereavement support includes personalized memory boxes, memorial bricks for placement in Babies and Children’s Memorial Garden, “A Children’s Remembrance” ceremony, and parent/family workshops. In addition, Living in Love team members participate in research and education, provide educational programs, and facilitate support services for staff.

Contact: (631) 444-4000

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The Pediatric Neuro Oncology Team
The Pediatric Neuro Oncology Team (PNOT) is a multidisciplinary team of health care professionals developed to offer advanced diagnostic, therapeutic, and supportive care to children diagnosed with brain and spinal cord tumors—maximizing both the opportunity for cure and the best possible quality of life.

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Play It Forward-ACTS Program (Athletes, Courage, Teamwork and Support)
Initiated and coordinated by a Stony Brook nurse practitioner, this program links sports teams from Stony Brook University and local high schools to children in the pediatric hematology/oncology program. Its win-win approach gives Stony Brook student athletes an opportunity to serve, and children with blood disorders or cancer social support.

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School Re-Entry and Intervention Program for Children with Cancer and Chronic Blood Disorders
The leading program of its kind on Long Island, Stony Brook Children's School Re-Entry and Intervention Team leads a collaborative effort to facilitate educational services for children with cancer and chronic blood disorders during and after illness. The interdisciplinary team provides faculty and classroom presentations to address the medical, psychosocial, and educational needs of the student-patient. The program works with all schools in Suffolk and Nassau Counties to return children to school in the most productive setting possible. The goal is to provide open communication between hospital, school and family and remove any obstacles that may impede a smooth transition.

In addition, the team presents an annual conference called "Educate the Educators," reaching healthcare professionals, parents and community members about the impact of childhood cancer and blood disorders on education. 

Stony Brook's School Re-Entry and Intervention Program is nationally and internationally recognized. It serves as a model for other institutions, with team members presenting at national conferences frequently as well as serving on boards of nationwide professional organizations.

Contact: For more information, call (631) 444-7521 or click here.

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Surviving the Search: FREE College Workshop and Expo for Students with Cancer and Blood Disorders
With the generous support of a Community Impact Grant from CureSearch, the School Intervention & Re-Entry Program is proud to offer a workshop specifically for students with cancer and blood disorders who are transitioning to college. This program is designed to educate these students as well as their siblings, parents and school personnel about their unique needs, and to empower this special population of students to realize their academic goals. 

In addition to the workshop, there is an optional essay writing workshop in the morning, which will be led by an experienced AP English teacher. This will be a hands-on session guiding students through the process of telling their personal story through a college essay. After the workshop there will be an expo with representatives from many regional colleges available to speak individually with students and families about their schools, programs and services. There will also be representatives from illness-related organizations.