Duchenne muscular dystrophy (DMD) is the disease’s most common form, affecting over 1,000 patients, primarily boys, in the tri-state area of New York, New Jersey and Connecticut. The opening of the Duchenne Muscular Dystrophy Comprehensive Care Center at Stony Brook Children’s Hospital marks a new era in the level of care available to these patients.
Unparalleled in the region, the Center is modeled on standards of excellence established by the Centers for Disease Control and other major national organizations. Our approach includes precise diagnosis; coordinated, multidisciplinary teamwork; support and advocacy; rapid application of new evidence-based knowledge; and identification of clinical trials to benefit patients.
Each of these elements contributes to better management and understanding of DMD. Our goal is to enable patients to live both as fully and as long as possible, while paving the path toward increasingly improved outcomes.