Duchenne Muscular Dystrophy Comprehensive Care Center

Clinical Programs — Duchenne Muscular Dystrophy Comprehensive Care Center

Stony Brook Children's Services is offering Telehealth services which will allow our patients to receive our high-quality care from the safety and privacy of their home.

To see if your pediatric needs can be met virtually, please call Stony Brook Children's Service at (631) 444-KIDS.

If you have already booked a Telehealth visit and have questions about connecting to Microsoft Teams for your visit, please call one of our representatives at (631) 638-0597 Monday through Friday from 8 am to 6 pm. They will be happy to assist you. If you require support outside of these hours, please visit stonybrookmedicine.edu/telehealth.

Cómo unirse a su visita médica de telesalud de Stony Brook con la aplicación Microsoft Teams

Duchenne muscular dystrophy (DMD) is the disease’s most common form, affecting over 1,000 patients, primarily boys, in the tri-state area of New York, New Jersey and Connecticut. The opening of the Duchenne Muscular Dystrophy Comprehensive Care Center at Stony Brook Children’s Hospital marks a new era in the level of care available to these patients.

Unparalleled in the region, the Center is modeled on standards of excellence established by the Centers for Disease Control and other major national organizations. Our approach includes precise diagnosis; coordinated, multidisciplinary teamwork; support and advocacy; rapid application of new evidence-based knowledge; and identification of clinical trials to benefit patients. 

Each of these elements contributes to better management and understanding of DMD. Our goal is to enable patients to live both as fully and as long as possible, while paving the path toward increasingly improved outcomes.